All posts tagged: condition

What is Chiari? How Can You Help? Conquer Chiari Walk Across America

If you think it’s the name of a fine wine, think again.   I needed to ‘google’ Chiari to find out all of the details of a condition that is affecting many people, especially one who became my friend through the internet.   Stephanie was a vibrant EMT worker, as well as a devoted search and rescue person.  She helped coordinate and participated in searches for high profile missing persons, including Stacy Peterson.  Stephanie was always the positive “go-getter” in online forums discussing missing persons cases, and has a heart as big as Texas. Stephanie was diagnosed with Chiari.  What a shock to the online community she became close to.  She had to have surgery which left a zipper like scar from the base of her neck up the back of her head, and she still lives with the pain this condition produces. Stephanie, as well as others, has had to make large adjustments in her every day life as a wife and mother.  But, in true Stephanie style, she rallies and stays positive.  She …