“I Told You I Was Sick”
A story of discovery and growth through catastrophic illness
The Hyde Park Free Library in Hyde Park, New York will host a presentation and book signing Thursday, April 24, 2014, at 7pmET. Amy Susan Crohn will appear to give the presentation, “I Told You I Was Sick!” based on her recently released book, DYING TO LIVE: Running backwards through cancer, Lupus, and chronic illness. Her event is combined with a book signing, as well as a tour of the Memorial Exhibition of the art of her brother Steve Crohn. Recently deceased and the subject of a New York Magazine feature, Steve Crohn is well-known for his post war, modernist paintings in the abstract style. The Memorial Exhibition runs through April 30th.
Amy Susan Crohn was a 36-year-old wife and mother of two beautiful boys, one an adopted foster child, when she was struck with the reality of, not only stage IV cancer, but also a second life threatening disease, Lupus. In DYING TO LIVE Amy relates her personal and up close journey through her medical emergencies and near death experience, as well as the connection of her illness to her dysfunctional family and childhood.
Background of Amy Susan Crohn
Descended from a blended family, with two eccentric parents, and the legacy of being the grandneice of Dr. Burrill B. Crohn, a leading gastroenterologist whose work greatly advanced the understanding of ileitis -also known as Crohn’s disease at Mt. Sinai Hospital, Amy was accustomed to the medical world.
Living on her own by age 17, Amy employed all the survival skills she could muster, and she eventually fell in love and married. Living a dream with a happy marriage and two magnificent sons, everything seemed to have fallen into place; a place of “normal” and finding happiness within the family that she created, everything she missed in her own childhood. Amy’s childhood was often filled with wonder and anxiety, leading up to the crescendo, her body completely broken, and diagnosis of two life altering diseases, Stage IV cancer and Lupus.
While recovering and healing from her medical crises Amy used her down time to research the subject of childhood maltreatment and its effect on adults with chronic illness. She discovered the Adverse Childhood Experience Study (ACE) and advocates that doctors become more aware of it as well as utilize the simple questionnaire to better understand their patients’ family history. Within the pages of DYING TO LIVE readers will find a “professional patient’s” organized advice, along with an open letter to present to any new doctors those with chronic illness may encounter. (pages 97&98).
Amy continues to use the information gathered in her studies to assist others going through catastrophic and chronic illness, and recently began training to become a volunteer with Court Appointed Special Advocates (CASA) which advocates for the best interests of abused and neglected children in courtrooms and communities.
Friends of Hyde Park Free Library and attendees are given a special discount when purchasing DYING TO LIVE: Running backwards through cancer, Lupus, and chronic illness. For a $3 discount through Create Space Store, use the following discount code at check out: D7S5XATT
Hyde Park Free Library
2 Main Street
Hyde Park, NY 12538
DYING TO LIVE Book Details:
DYING TO LIVE: Running backwards through cancer, Lupus, and chronic illness
Author: Amy Susan Crohn
ISBN-10 1482568098 ISBN-13 978-1482568097
Publisher: Create Space Independent Publishing Platform; 1 edition (June 4, 2013)
Website and Blog: DyingToLiveAmy.Com
Amy Susan Crohn Hyde Park, New York Presentation and Book Signing Event