If you think it’s the name of a fine wine, think again. I needed to ‘google’ Chiari to find out all of the details of a condition that is affecting many people, especially one who became my friend through the internet. Stephanie was a vibrant EMT worker, as well as a devoted search and rescue person. She helped coordinate and participated in searches for high profile missing persons, including Stacy Peterson. Stephanie was always the positive “go-getter” in online forums discussing missing persons cases, and has a heart as big as Texas.
Stephanie was diagnosed with Chiari. What a shock to the online community she became close to. She had to have surgery which left a zipper like scar from the base of her neck up the back of her head, and she still lives with the pain this condition produces.
Stephanie, as well as others, has had to make large adjustments in her every day life as a wife and mother. But, in true Stephanie style, she rallies and stays positive. She has been active on Facebook gathering others together to bring awareness to Chiari.
Please visit the Chiari Center Foundation, learn about this condition, and leave words of encouragement for those who are suffering with it. It means a lot.
Stephanie is raising funds to help victims of Chiari through The Conquer Chiari Walk Across America which is an annual fundraising and awareness event comprised of a series of local walks held on the same day.
In 2010, the event was held at 28 different locations, involved more than 4,000 participants, and raised over $330,000. We are proud to say that 87% of the money raised will be used directly to fund research projects and that only 13% was required for overhead and expenses. This year the walk will be held on September 17th, and it is our goal to raise at least $375,000 for research.
Message from Stephanie:
I can’t speak for others but Chiari has stolen most of my life from me. The only things I have not lost are my Husband, my children, and some great friends. I had a career I love stolen away, the ability to support my family ripped from my fingers, and lost the freedom of being able to live without pain and heavy medications stealing most of my waking moments. Please help us find a cure for Chiari, I want my life back, I want to be a wife and mother again instead of the lump in the bed that everyone has to tip toe quietly around. Please, we need awareness and research to stop this condition from stealing all that it does from so many of us. There is nothing CURRENTLY that can be done for me, CURRENTLY, but with RESEARCH…. ONE DAY I could have my life back. PLEASE help make that a possibility. Thank you.
For more details on how you can help raise funds and awareness for the victims of Chiari, please contactStephanie through her Stephanie Kreidler’s Conquer Chiari Walk Across America Page.